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Showing posts with label neurodiversity. Show all posts
Showing posts with label neurodiversity. Show all posts

Monday, 19 August 2024

Metro: I’m young, fit and healthy – but I live with a hidden condition

Very proud of my daughter Emma Evens for raising awareness of epilepsy once again, together with Epilepsy Action - see https://metro.co.uk/2024/08/17/im-young-fit-healthy-live-a-hidden-condition-21365757/.

Emma writes: 

"I have been working with the amazing Epilepsy Action team and I now feature in a great new article in the Metro Inc. which focuses on people living with Epilepsy and the struggles that they have faced. Do not fear us, ask us!

• Epilepsy affects an estimated 633,000 people in the UK – around one in every 100 people.

• It's one of the most common neurological conditions globally, 87 of us are diagnosed every day."

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Taylor Swift - Epiphany.


Saturday, 7 May 2022

Disability and Church: Intersectionality


I'm looking forward to moderating this webinar on a vital topic with a wonderful panel. Do join us.

A Church Times/HeartEdge webinar

Intersectionality is a way of describing how social categories (e.g. disability, race, gender) combine to create overlapping systems of discrimination or disadvantage. In the latest HeartEdge Shut In, Shut Out, Shut Up series we are exploring intersectional experience of disability and neurodiversity, gender, mental health, sexuality, race and poverty.

This additional webinar, organised with the Church Times, asks, what are the key issues in the context of faith and what are our calls to the church?

Register here.

Panel
  • Lamar Hardwick (he/him) (DMin, Liberty Baptist Theological Seminary), also known as "the autism pastor," is the lead pastor at Tri-Cities Church in East Point, Georgia. He is the author of Epic Church, I Am Strong: The Life and Journey of an Autistic Pastor, and the award-winning book Disability and The Church: A Vision for Diversity and Inclusion (InterVarsity Press 2021).
  • Naomi Lawson Jacobs (they/them) is a researcher, disability advocate and trainer, who completed a PhD on the experiences of disabled Christians in 2019. Their book, At the Gates: Disability, Justice and the Churches, is out in June 2022, co-written by Emily Richardson. The book shares disabled people’s stories of marginalisation in churches, their cries for justice from the edge, and their transformative theologies for the whole church.
  • Fiona MacMillan (she/her) is a disabled and neuordivergent advocate, practitioner, speaker and writer. She chairs the Disability Advisory Group at St Martin in the Fields, is a trustee of Inclusive Church, leads the planning team for their annual disability conference and convenes the Shut In Shut Out Shut Up series for HeartEdge. Fiona is a member of the Nazareth Community and was recently elected to General Synod.
  • Rachel Mann (she/her) is an Anglican priest, writer, scholar and broadcaster. Author of 12 books, she has written theologically about her experience of hidden disability and chronic illness in the critically-acclaimed Dazzling Darkness (Wild Goose, 2012/2020) & Love’s Mysteries (Canterbury Press, 2020). She is a member of the Church of England’s Theological Advisory Board, The Faith & Order Commission.

Access information

BSL, automatic captions, livestreamed using Streamyard and available to watch live or recorded.

Shut In Shut Out Shut Up is a disabled-led space for challenging questions and honest conversations about theology, faith and church. Hymns A&M and HeartEdge recently announced an agreement to work together on future projects. This is the first in an occasional series of joint webinars.

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Martyn Joseph - He Never Said.

Wednesday, 13 November 2019

Thinking Differently About God

Thinking Differently About God was a weekend of events to mark the 8th annual conference on Disability and Church, a partnership between St Martin-in-the-Fields and Inclusive Church.

Videos, texts and more from the speakers at the conference can now be found on the Inclusive Church website. These include:

Fiona MacMillan: Introduction to the conference (video)

Fiona is chair of the Disability Advisory Group at St Martin-in-the-Fields and a trustee of Inclusive Church. After ten years managing innovative health projects Fiona studied at the School for Social Entrepreneurs, becoming one its first fellows. She has been collecting health and neurodivergent labels for the last 20 years, and combines these experiences in her writing and work on disability, lived experience and questions of social justice. Fiona coedited the booklets Calling from the Edge and Something Worth Sharing. She is a member of the Nazareth Community.

Dan Barnes-Davies: Storyteller (video)

Dan was born and raised in rural north Essex, but is also a Londoner by adoption. He started to help with these conferences as an Inclusive Church trustee years ago. He has pursued and received diagnoses of dyspraxia and ADHD in those years, deepening his self-understanding. Among these insights is a new perspective on his otherwise very privileged experiences, and to encounter (some) institutional discrimination.

Ann Memmott: Talk on autism and church (video) and Powerpoint presentation.

Ann is autistic and faceblind, lives with arthritis and has nerve damage from chemotherapy for past cancer. Having been unable to use spoken language to communicate for the first ten years of life, Ann sometimes uses technology to assist. Her experiences of encountering anxiety around autistic people in church contexts have led her to pioneer work in this field. The autism guidelines for the Church of England were written by Ann & her team. In her wider work Ann is a Director of an international autism advisory group and a Trustee of Autistic Pride Reading.

Sam Wells: Talk on the parable of the persistent widow - part 1 and part 2. Notes from Sam's talk are here and here.

Sam is Vicar of St Martin-in-the-Fields, and a widely known preacher, pastor, writer, broadcaster, and theologian. He has served as a Church of England parish priest for 21 years. He also spent 7 years in North Carolina, where he was Dean of Duke University Chapel. Sam is also Visiting Professor of Christian Ethics at King’s College London, and a member of the Multi-Stakeholder Council that advises the G20 meetings. He has published 33 books, including studies in Christian ethics and explorations of liturgy, preaching, faith and mission. His most recent book is Walk Humbly (Canterbury 2019).

Rachel Noel: Storyteller (video) and text.

Rachel is affectionately known by the local press as the Pink Vicar. She had a particularly formational journey through curacy during which she was diagnosed with Bipolar, ADHD and Sensory Processing Disorder, with strong autistic traits; she is currently awaiting ASC assessment. Rachel lives and works openly with these conditions, and has been licensed as Priest in Charge of St Mark’s Church, Pennington. Her gifts and symptoms include high energy, enthusiasm, creativity and love of colour - especially pink! Rachel loves exploring her faith and spirituality through creativity, stitch, paint and contemplation, and is a member of the Community of Hopeweavers.

Bingo Allison, Sue Hartley, Krysia Waldock and Philip Hickman: Panel (video) and notes/ pdf presentations: Bingo, Sue(powerpoint), Sue (pdf), Krysia and Philip.

Bingo (they/them) is a genderqueer, autistic, dyspraxic person working as a curate to The Order of the Black Sheep, a fresh expression of church in Chesterfield in Derby Diocese. They have been involved in disability activism for the last fourteen years and have contributed to various secular and religious discourse around neurodiversity and liberation, including as a storyteller in the Inclusive Church resource book, Disability. Bingo is also a performance poet who uses their poetry to reflect on their own experiences as an autistic and transgender person in the church.

Sue is a retired GP and a self-supporting priest in the Chelmsford Diocese. She is an Ignatian trained spiritual director with experience of leading individuals through the Spiritual Exercises. Other ministries include hospital chaplaincy and providing chaplaincy support to an independent secondary school for students with autism. Early in 2017, she received a diagnosis of autism. Since then she has been passionate about raising awareness in churches, and reflecting on the interface between autism and spirituality.

Krysia is an autistic PhD student at the University of Kent exploring autism within different beliefs, including religious and humanist systems. She also is a rotational panelist on BBC Radio Kent's Sunday Breakfast and writes a blog 'Musings of an autistic researching spirituality'. She has been campaigning for a more 'inclusive church' in her local Methodist circuit for the last 3 years. @krysiawally. Read Krysia's recent posts and report here, here and here.

Philip writes: 'As someone who has been identified as dyslexic I have had trouble with expressing myself with words. As a “Visual Theologian”, my aim is to minster to the effectiveness of the Christian Contemplative practice of photography and thus come to understand a deeper realisation of the divine nature of God. As someone who is identified with cerebral palsy, my work as a photographer helps me question my own identity and its implication to the wider world. Working closely with photography, contemplation and my identity, my research questions the less fortunate understanding of my identity and questions my own true self; that is to help me answer the question; “Who am I?”.

2019 Conference Eucharist: Liturgy and Poem

Workshop: Descriptions

Sunday morning: liturgy (pdf) and Ann Memmott's address (audio)

Sunday afternoon: report.

Since 2012 this annual conference has held space for disabled people- to gather, to resource each other and the church. It's a partnership between St Martin-in-the-Fields and Inclusive Church, working #withnotfor disabled people.

At the 2019 conference a brand new booklet 'Something Worth Sharing' was launched. This is now available to download! In it are ideas, responses and resources from the 2018 conference. Exploring access and theology, language and structures, communication and participation. The booklet 'Calling From the Edge' celebrating the first 5 conferences is available here.

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June Boyce Tillman - Hope Psalm.

Saturday, 12 October 2019

Thinking Differently About God: Neurodiversity, Faith and Church




 


 

 


 





Thinking Differently About God: Neurodiversity, Faith and Church
Saturday 12 and Sunday 13 October

A weekend of events to mark our 8th annual conference on Disability & Church, a partnership between St Martin-in-the-Fields and Inclusive Church.

Neurodiversity is the idea that there are natural variations in the way people think and process information. These include autism, ADHD, dyslexia, dyspraxia and Tourette's - each a particular combination of needs and gifts. 

We explored our understanding of God and sharing experience of discovery, discrimination and discernment. Speakers included: Bingo Allison, Dan Barnes-Davies, Sue Hartley, Phillip Hickman, Naomi Jacobs, Ann Memmott, Rachel Noel, Krysia Waldock, WAVE and Sam Wells.

We welcomed 80 people from across the country and are hugely grateful to the many people who supported the event. Participants said:
  • Brilliantly stimulating conference at St MitFs on neurodiversity. Speakers telling their stories. "Divinely disruptive", "Different not broken". God loves and accepts all of us.
  • Fabulous day! Thank you all so spoke with and whose company I enjoyed - church should be like this more often!
  • Thank you for being a bright bulb in our lives. I am motivated and moved following today’s Neurodiversity Conference. I engaged with many participants who were uplifted because they had the space to unpack hidden challenges.
  • Every year I leave the conference at St Martins in the Fields thinking that it truly is a prophetic voice to the wider church. Today is no different - a truly transformative and challenging day. Thank you to all the speakers and especially to Fiona and her team.
Tomorrow at the 10.00am Eucharist at St Martin-in-the-Fields we welcome Ann Memmott, author of Church of England guidelines on welcoming autistic people, as our visiting preacher. Parts of the liturgy have been written by our Disability Advisory Group, under the guidance of Sam Wells. The service is BSL interpreted.

Something Worth Sharing: we'll also be launching a new booklet on disability and church. Based on our 2018 conference it shares ways to create change in church. Includes our own Disability Advisory Group, theological reflection by Sam Wells and an introduction by the Bishop of London. Copies are available after service in the Lightwell. Donations to support this work are welcome.

At 2.00pm in St Martin's Hall we explore the ideas via the creative arts. Including an introduction to Contemplative Photography by Phillip Hickman and a special screening of ‘Touretteshero: Me, My Mouth and I’; a documentary exploring neurodiversity in the visual arts through the lens of Samuel Beckett's play, 'Not I'. We'll be joined by Jess Thom (aka Touretteshero) – to explore what the arts have to teach the church about diversity, acceptance and belonging.

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Sunday, 28 July 2019

Thinking Differently About God: Neurodiversity, Faith and Church


Saturday 12th October – Sunday 13th October 2019 

A weekend of events to mark our 8th annual conference on Disability and Church, a partnership between St Martin-in-the-Fields and Inclusive Church

Download the flyer here

Saturday 12th October 10.30-16.30 St Martin's Hall, St Martin-in-the-Fields
Thinking Differently About God: Neurodiversity, Faith and Church


Neurodiversity is the idea that there are natural variations in the way people think and process information. These include autism, ADHD, dyslexia and dyspraxia, and Tourette's- each a particular combination of needs and gifts. We'll be exploring our understanding of God and sharing experience of discovery, discrimination and discernment.

Speakers include: Bingo Allison, Dan Barnes-Davies, Sue Hartley, Phillip Hickman, Naomi Jacobs, Ann Memmott, Rachel Noel, Krysia Waldock, WAVE and Sam Wells.

Through plenary talks, in workshops and in small groups, with a silent space and a marketplace, we gather to resource each other and the church. Organised by and for neurodivergent people, supporters and those with an interest in the issues and ideas.

We prioritise the voices of neurodivergent people at this conference as they are rarely heard in church contexts. This is in keeping with the conference tradition to focus on the lived experience of disabled people themselves. Parents, carers, supporters and others with an interest are also welcome.

Register today at https://www.inclusive-church.org/disability-conference-2019


Sunday 13th October 10-11.15, St Martin-in-the-Fields
Thinking Differently About God: Eucharist


We reflect on the weekend's themes in our main Eucharist using liturgy written by members of St Martin's Disability Advisory Group, under the guidance of Sam Wells. Address: Ann Memmott, main author of the Church of England guidelines on autism. BSL interpreted. All are welcome.


Sunday 13th October 14.00-16.30, St Martin's Hall
Thinking Differently


An afternoon programme using insights from the creative arts to explore the weekend's themes. Performance, panel discussions and workshops- details to be announced. You don't have to register in advance but it helps if you do. All are welcome.

Registration: disability@smitf.org

Tickets are free, retiring collection to cover costs.

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St Martin's Voices - A New Commandment.